Gayle

Grand Canyon

Grand Canyon Camper Village, Arizona

May 5 days

The drive from Zion to GC is monotonous. It consists of two-lane minor highways through scrub brush and desert. Eventually we roll up to the South entrance of the national park. We received the traditional park brochure and a pocket map which came in handy. After we set up camp we went to a few observation points. The Grand Canyon lives up to its name. We are bowled over

Friday morning, we rode our bikes to the South Kaibob trail head. You can ride bikes on the rim of the canyon! It is amazing. We stopped for some scenic vistas; however, I am enthralled with riding next to the canyon. It’s so exciting to pedal along and right next to you is the expanse of the canyon. We rode from the S Kaibob trailhead to Mather Point which has exceptional views. Afterward we rode to the village and stopped for lunch. We both had a beer to accompany our meal. With the hot sun and exercise the beer finished us for the day. We both needed a nap.

Saturday, we took the truck out to Desert View Watchtower and the Tusayan ruins. The Watchtower, designed by Mary Colter in 1932 is 7 stories high. The tower blends with the surrounding landscape perfectly. The interior is adorned with Indian motifs. It is free and completely run by volunteers. In the afternoon, we hopped on our bikes to do a little exploring. We rode around the park and thanks to my excellent navigation ended up in a residential area that is not on the handy pocket map. Well, we found our way back to the campground eventually. In the evening, we went out to watch the sunset and stargaze.

Sunday, we rode our bikes all the way to Hermit’s Rest, about 13 miles one way. It was a long ride, and I was grateful for our e-bikes. I usually start the day full of ambition and pedal without the electric assist. As the day goes on, I rely more and more on the electric power. Once again, we took a wrong turn on the way back and found ourselves in the residential neighborhood. By the time we got back to the camper my legs were useless and I was fully dependent on the bike.

Monday, we had no plans other than not riding bikes. We decided to go to the IMAXX theatre and see “Rivers Of Time.” The movie portrayed the geologic formation of the GC, the history of the indigenous people and the exploration of the GC by the settlers. It was outstanding. I am amazed by the first navigation of the river. They had no idea what was in front of them. They loaded up dories and set out. 3 men quit the journey and attempted to hike out. They were never heard from again. The men that stayed with the boat trip made it to the end of the canyon.

Afterward, on our way to get gas, we drove by Grand Canyon Airport. We revisited the idea of taking a helicopter tour of the canyon. We had batted this idea around all week. Steve had reservations about the expense. I felt it was intrusive and a bougie thing to do. Still, it looked fun, and we were right there. What’s the chance they would have an opening that afternoon? Turns out the chances were good. They had availability in an hour. We got over our reservations pretty damn quick. We went on that helicopter tour and I’m glad we did. When the chopper drops over the lip of the canyon it is spectacular! We ended our GC experience with a bang. (figuratively speaking)

Throughout our stay elk wandered into the campground almost daily. It was quite a treat to drink my morning coffee with elk grazing outside the window. Tomorrow, we begin the journey home.

The road to Zion NP

Black Canyon RV Park, Colorado

May 3 nights

The trip to Cimmaron, Colorado was exciting. The app on my phone recommended a highway route. The RV GPS took a more direct route. We chose the GPS route. Initially, I thought we made a mistake, and I was grumpy. The road was rough, narrow and remote. Suddenly, as we rounded a foothill, the view revealed cliffs, mountains and rivers. Absolutely stunning. It was a beautiful scenic drive and a great introduction to Colorado.

Holy Guacamole! I picked a winner when I chose this camp. It’s hard to tell sometimes when you’re looking at campgrounds online. This place has great reviews, and they are all true. The facilities are spotless, good wifi and the view is spectacular. We were surrounded by mountains. We went on a lovely little hike up the street at Morrow Dam. I think Steve is beginning to embrace the hiking lifestyle.

Monday and Tuesday, we went to Black Canyon of the Gunnison NP which I had never heard of. The canyon is steep and deep ranging from 1,700’ to 2,700’ deep. Some places on the canyon floor only receive 30 minutes of sunlight per day. The drive along the rim has majestic views. Most of the lookouts required a short walk to the viewpoint. We were in and out of the truck many times to take in the remarkable sights.

Steep and Deep carved by the Gunnison River

Tuesday afternoon, my son Mike called. My heart skipped a beat. Mike seldom calls so I knew this probably would not be good. His father-in-law Gary passed away that morning. Shocking! He just celebrated his 80^th birthday. Gary has been to our house many times for holiday celebrations. He will be missed.

My daughter-in-law, Jessica, is close with her dad. I can’t be there to help. Of course we’ll send flowers, but it feels like a feeble attempt at compassion. Having lost my Dad in 2023 I feel for her. I will miss my Father for the rest of my life. You always think you have more time.

Ballard RV Park, Utah

May 4 nights

It was a short drive under bright blue skies to Southern Utah. Verdant mountains give way to the desert and wind sculpted towers of terra cotta stone. This park is basically a gravel lot with hookups. They have planted trees which will be nice in a few years. Southern Utah is desert and mesas and buttes and windy.

We spent Thursday in Arches NP. Not surprisingly we saw quite a few stone arches.

The following day we went to Dead Horse Point SP. We stopped along the way to see some dinosaur footprints. It was nifty. At the state park the Colorado River has carved a winding, broad 2000’ deep valley. It’s not a narrow canyon like Black Canyon. Standing on top of the cliff you can see all the way to the Colorado Rockies.

Saturday, we relaxed. I finished planning our trip home. Unless I change my mind, which could happen. Right now we’re heading to Zion.

Zion River Resort RV Park, Utah

May 4 nights

Sunday was a dreary, rainy day. We traveled to the campground under grey skies. The RV park is tidy and neat although congested. Zion is a popular tourist area, so it is to be expected that real estate is at a premium. I expect the Grand Canyon will be the same.

Monday morning, we woke to bright blue skies. We drove to Kolob Canyons at the Northern end of Zion NP. We had a nice little hike on the rim of a canyon. Afterward we checked out Grafton Ghost town. It was a few miles off the main drag, eventually becoming a dirt road. I was starting to think the GPS was mistaken when we drove around a bluff and came upon it. Several buildings have been partially restored, and they are open. It was fascinating. Grafton was a Mormon settlement that was abandoned because of conflict with the Indians. The cemetery is up the street. Also, partially restored by a local organization. I’m impressed that a group of local people care enough to restore this remote village.

The next day we got up bright and early to get a spot in the Zion NP parking lot. It fills up early and you must park in town if you don’t get in. We brought our electric bikes and had an excellent time. We rode our bikes the entire scenic drive. No passenger cars are allowed so it is a fantastic ride. The e-bikes are so fun! You can get as much exercise as you want, and when you get tired the bike helps you out. We went hiking as well. On our hike deer were alongside the trail. They are accustomed to people as long as you don’t bother them. Afterward we rode into town and got an ice cream. We were both tuckered out by the end of the day.

Wednesday, we rest and get ready for the Grand Canyon. We had planned to go to Bryce Canyon NP, but our get up and go failed us. Oh well you can’t do everything. We’ve seen quite a few canyons in the last couple of weeks. I hope the Grand Canyon lives up to its reputation. We’ll see.

On the Road Again

Spring 2025

Ricketts Glen SP, Pennsylvania

Day one of our cross country trip. Surprisingly I booked the first night of the trip in the boonies. After what seemed like a lengthy back road journey we found the campground OK, but we got lost on the way to our campsite. I had to turn the camper around on a dirt road. So typical, Steve and Gayle driving around in circles. Not the most auspicious start. Eventually we got set up. One night and we’re on the road.

Shenandoah River SP, Virginia

This is a beautiful park. I wish I had planned more time here. There are more than 1600 acres along 5.2 miles of the Shenandoah river. Hopefully we’ll be back someday. I’m anxious to put miles toward the Grand Canyon so it’s a quick stop.

Warriors Path SP, Tennessee

May 3 nights

Tennessee has spectacular parks, and this one is a dilly. We had a couple of days to relax and recreate. After unpacking the bikes we went for a ride around the property. We found the marina and agreed to come back the next day and rent a canoe. In the afternoon my hike is blessed with a snake. I like snakes so a big black racer stretched across the path made my day. I hung out with her for a while before moving on. Thursday, we rode our bikes to the marina and rented a canoe. It was delightful. We had a leisurely paddle on the Holston River. Gliding along the shore we met up with a deer family. They were unconcerned with us. We happily floated alongside them, before heading back to the marina.

The afternoon was hot, temps well into the 80’s. Our little camper is dark blue and holds heat very well. No problem. We turned on the air conditioner. Problem. No air flow. We quickly determined the fan was not working. I climbed on the roof to investigate. I found a bird’s nest firmly lodged in the fan, complete with small, speckled eggs. I had to dismantle this carefully constructed creation. What else could I do? The Momma is back in Massachusetts wondering what happened to her home. Anyway, the problem was solved. Tomorrow we’ll be on the road with a functioning AC.

Campers RV Park, Tennessee

May 2 nights

Driving to the campground we got caught in a torrential downpour. Fun. Who doesn’t enjoy driving in a monsoon. Saturday, rain, and more rain. No matter, I had scheduled a workday. Laundry, errands and trip planning. I made reservations for the next 2 weeks. That completes the trip through the Grand Canyon. I still need to figure out the way home.

H & G RV Park, Arkansas

Shake rattle and roll. The highway to Arkansas was rough. Little blue got shaken up. When we arrived at the camp we found knobs and screws strewn about. One of the kitchen drawers was off track. It took several minutes to repair. We’re hoping the mickey mouse repair lasts through the trip. We’ll see. A quick night here, we didn’t even unhook. The fun stuff starts tomorrow.

Sequoyah SP, Oklahoma

May 2 nights

This is a superb campground. It is quite large. We drove a couple of miles from the entrance to our site. Due to the early season there were very few campers. There had been a considerable amount of rain and some of the park was flooded. Neither the marina nor the golf course were open. We still found plenty to do. We rode our bikes all around the roads and trails. We saw deer, turkey vultures and assorted wildlife.

Boiling Springs SP Oklahoma

May 3 nights

Another tremendous park. Not as large as Sequoyah, but interesting. Many of the buildings as well as the lake were constructed by the CCC in the 1930s. There is a small spring bubbling up that lends the park its name. The spring is not very exciting, but that’s alright.

We were the sole occupants for the first couple of days so that was fun. We explored every inch of the place on our bikes. One night we found a bar in town that had the Celtics playoff game on. We ate and drank too much while the Celtics blew a 20 point lead to lose in the end.

We had enough time to go to Gloss Mountain SP for a hike, which was not too strenuous, but very scenic. A short steep ascent brings you to a wide flat plateau with views for miles. We saw a couple of “Mountain Boomer” lizards and the buzzards circled overhead waiting for us to drop. Not this time!

Willow Springs RV, New Mexico

A quick 1 nighter on our way to Colorado. Just off hwy 25 this place is fine for the night, but nothing tempts us to stay longer. We’re excited to be heading into Colorado. Now we feel like we’re making progress.

Homesick?

It’s time to go home. Steve has had enough of life on the road. I miss my friends and family, but I could spend another week or month traveling. We had a tornado delay in Oklahoma which goofed up my plans slightly. Now we are packing up, driving, setting up, sleeping, packing up, driving, setting up, sleeping for several days in a row. We still manage to find some fun stuff to do.

As much as I wanted to see a rodeo, Steve wanted to see a ghost town. I did the best I could to accommodate him. Tuesday, we went to Ingalls OK, the scene of a gun battle between the Dalton – Doolin Gang and a posse of lawmen. It’s one of the most infamous gun battles in Oklahoma. Most of the gang escaped. There’s a monument to 3 fallen U.S. Deputy Marshals and some old decrepit buildings. Also, a cemetery that has fallen into disrepair. We were both taken aback by the number of children’s graves. Back in the day life was tough. Many families lost multiple kids. Once again, I’m reminded how fortunate we are to benefit from healthcare advances.

Wednesday, we traveled to Lebanon Mo. After setting up camp we had enough time to go to the Uranus fudge factory. You can’t make this stuff up. Uranus is a shopping area that has a silly store, goofy museum, and food concessions. The store has a great deal of fun with their name and the fudge is delicious. That’s about all we did in Missouri because as I said Steve is ready to be home.

We spent a night in Illinois and then we drove through Indiana to Galena Ohio. The weather turned markedly colder the minute we got to Ohio. I would have been content to stay out West for another week or two. Just saying. Anyway, we continued on to Pennsylvania. We traveled all day in cold driving rain. It wasn’t fun. I’m not saying it’s Steve’s fault, but it kind of is. We hunkered down for a couple of days in cool drizzle. It was good to take a break from driving. Only one more stop in New York and we’ll be home. I’m planning our next trip already.

Things you see in Pennsylvania on a drizzly day

RODEO

What’s in Clovis NM besides fields full of cows? The rodeo. That’s right I diverted our trip home 250 miles south to see the Pioneer Days PRCA Rodeo and it was worth every mile. It was 2+ hours of nonstop entertainment. There was bare back bronco riding, roping competitions, stunt riders, barrel racing, bull riding and mutton busting. I would go again.

Mutton busting is when a little kid gets on the back of a sheep and holds on for all they’re worth. It doesn’t take long for the sheep to shed the kid. The sheep are happy to be rid of the child and they are none the worse for it. The kids get big applause, an official competition bib and a score, so they are tickled pink. It sounds strange, but it’s cute as heck.

Now it really is time to start heading North and East. Saturday, we make our way into Oklahoma. It’s pretty here. Unlike New Mexico and Texas, there are lakes and streams. The fields are bright green, where the soil is exposed its terracotta red. It seems like you could scoop up a handful of soil and mold it into a clay pot. There are deciduous trees everywhere. Towers of leafy green goodness. I’ve missed trees.

By the time we arrive at our campsite it is apparent that I have an infection. I have become adept at picking up the early signs. I’m on antibiotics 2-4 times a year. First thought; Great, I’m in Fornicating Fly, Oklahoma and I need to locate a medical facility. Second thought; Why is this happening? Are my blood counts out of whack? Do I have leukemia? The cold stab of fear catches me off guard. After all these years I’m still anxious?

The unfamiliar surroundings have thrown me for a loop. I locate a clinic 20 miles away. They close at five. I drive like a bat out of hell to get there. When the young attendant takes my blood pressure she exclaims “It’s really high.” She looks at me like I’m an overfull water ballon that could burst at any instant. The second reading is also high. Eventually, the nurse practitioner takes my blood pressure manually. It has come down to 150/90. Still high, but not scary. I explain to her I’m a little amped up and why. She is casually efficient; calm and competent. She sends a couple of prescriptions to Walgreens. The pharmacy closes at six. I zip over there and get the goods. The health care system in this country is tremendous. I was examined, diagnosed, and had a prescription in hand in a little over an hour.

The night brings heavy rain. Thunder booms and the rain pounds our camper. I realize that I’ve missed rain too. Our little Winnebago holds up fine. No leaks, thank God. Sunday I am not feeling chipper, so we content ourselves with some souvenir shopping. I had hoped to go for a bike ride in the large state park. Oh well. Sometimes you must accept what life gives you. Tomorrow we will be in Oklahoma for another night and then on to Missouri. We’re closing in on home.

Whoops! I spoke too soon. We’re unable to travel Monday because of tornado warnings in most of Oklahoma. We’re in the southwest corner of the state so hopefully we’ll be safe here.

Stay tuned…

And We’re Off to…

Carlsbad NM

The drive from Big Bend NP to Carlsbad NM is a whole lotta nothing. Acres and acres of hard packed earth populated by waist high scruffy shrubs. Scenery? Well, there’s the Pecos oil fields. Oil derricks, electrical wires, and mobile homes for workers. Happily, things improved when we arrived in Carlsbad.

We spent a day at Carlsbad Caverns NP. Steve and I have toured caverns before, and they always have interesting formations. Carlsbad also has stalagmites and stalactites; however, the most impressive aspect is the enormity of the cavern. It’s a mile and a quarter hike down switchbacks, descending 750 feet. Then you arrive in the “Big Room.” The main chamber of the cavern is hugemongous (have fun with that spellcheck). There is a mile and a quarter trail that winds around formations of every description. It was captivating. We were both grateful for the elevator back to the surface.

After our subterranean adventure we were ready for some fresh air. We took a drive to Sitting Bull Falls, which was in the middle of nowhere. It’s a beautiful park with a short hike up to the falls. The falls weren’t roaring, more like a vigorous trickle. Still pretty and well worth the drive. I hiked to the top of the falls for a different perspective. Steve doesn’t get the whole hiking thing and I can’t explain it. I just love going up hills.

That about does it for Carlsbad. We took in some of the local historical sites and of course went to bars and restaurants. On to Santa Fe.

If the drive to Carlsbad was a whole lotta nothing, then the drive to Santa Fe was a whole lotta more nothing (less nothing? Not sure how to say it). Miles of dusty fields swathed in shin high greenery interspersed with a couple of farms in the distance. After driving on flat land for few hours there is a rise. Not exactly a hill, just a couple of gentle terrain waves. Suddenly, the city of Santa Fe materializes out of the dessert. We’re staying in an RV Park in the city. I’ve never seen an RV park in a city before. We’re minutes from the downtown historic section and the Georgia O’Keefe museum.

Of course, we go to the Georgia O’Keefe museum first thing in the morning. I feel like I could have been friends with Ms. O’Keefe. She found respite and inspiration in nature. She loved plants. Large noisy gatherings made her uncomfortable. She enjoyed traveling. I feel a kinship with her. Her artwork is stunning. I guess that’s where the similarity between us ends. The museum and audio tour were great.

From the museum we strolled into the historic downtown which is lovely. Antique adobe buildings line a central plaza. We eat a delicious meal outside looking over the park. Beyond the plaza a large ornate Catholic Church is open for tourists. The inside walls and ceiling are stenciled with brightly colored borders and motifs. It is striking. In time, we wandered back to our vehicle and return to the campground.

Wednesday, we ventured out to Bandelier National Park. Have you ever heard of Bandelier NP? Me either. The landscape is similar to Big Bend, but different. Towering cliffs of soft stone are carved by wind and rain. It’s the soft stone that allowed the Pueblo people to carve caves out of the cliff face. Ancestral Pueblo dwellings are within an easy walk of the visitor center. I also hiked to the Alcove House; a cliff dwelling reached by climbing 140 feet up long wooden ladders. Steve wasn’t interested in that. Most of the sane people stayed on the ground.

While we were in the neighborhood we took a drive to Los Alamos. The Los Alamos Labs are an extensive complex of dozens of buildings. They must employ thousands of people. The town of Los Alamos is one of the nicest communities I have ever seen. No trash, no graffiti, beautiful parks, and historic buildings. Even the teenagers looked neat. I guess when you have a population of scientists, engineers, and government employees this is the result. If I move, I know where I want to live.

Well, its time to move on. The next stop is Clovis NM. Why Clovis? The answer might surprise you. Follow along to find out. Thanks for reading my silly little blog.

Big Bend NP – WOW

We drove into Big Bend under cool cloudy skies heavy with rain. Ironic. We’re entering the Chihuahuan desert and it’s the same weather we left in Mass. Before long the rain gave way to drizzle, then fog. Winding through the mountains on an unfamiliar road pulling a trailer through thick fog requires concentration. I’m glad to be driving. I would be more nervous as a passenger. (Steve can confirm, I’m a lousy passenger) Finally, we arrive at our campground “Road Runner RV Park.” Setting up camp goes smoothly. We’re getting the hang of this.

Monday, we head into the park and spend the day travelling on the Ross Maxwell scenic drive. The weather is splendid, still cool enough to wear jeans. The scenery is spectacular. Pictures can’t do it justice. The park is a vast panorama of jagged mountains, flat topped plateaus, and buttes. The land mass is over 800,000 acres. To my delight the cactus are blooming. Many stops are required for me to photograph the blossoms.

We also visit the remnants of pioneer homes. I am amazed that people chose to settle in this harsh remote environment. I don’t know how they did it. It would be an arduous journey. When they arrived, they had to find water and food and build a shelter. One couple installed a wind driven well. They planted pecan and fig trees which still survive. They are supplied with well water to this day.

The following day we drove into the park to take in the dinosaur exhibit and the Chisos Basin. Many fossils have been discovered in Big Bend and they have an excellent roadside exhibit. The Chisos basin is an adventurous drive complete with hairpin turns and steep hills. Again, the scenery is indescribable. We also visited the grave of Nina Hannold, a 29-year-old mother of three. She died of Uremic poisoning (kidney failure) in 1911, probably brought on by dehydration. Once more I am stunned that anyone, let alone a couple with young children, would attempt to live here at that time. The temperature rises steadily throughout the day; it’s 90* by the time the sun sets.

Wednesday is river day. We spent the day paddling canoes on the Rio Grande. Sadly, the River is extremely low on water. We had a great trip and got to navigate through some minor rapids, but there is the only one traversable section of the river. In this part of the country the mighty Rio Grande is mostly dry creek bed. By the time we finished paddling at 2:00pm temperatures were soaring near 100*. We were glad to be done.

The Big Bend leg of our trip wrapped up Thursday with a drive to Big Bend Ranch State Park. We traveled on HWY FM 170 from Terlingua to Presidio. National Geographic rates this road one of the 10 most scenic in the US, with good reason. We made time for a short hike and lunch in Lajitas. Now it’s time to move on. See you in Carlsbad or maybe Santa Fe.

Hot Springs AR not so hot

By the time we arrived at Hot Springs and got the camper set up in Gulpha Gorge campground it was late afternoon. We hopped in our truck and drove into town under darkening skies and drizzle. My initial impression was not favorable. “This is it? This sucks.” I groaned. I returned to the campground a bit dejected. It wasn’t what I was expecting. Upon further reflection I realized that was a bit harsh.

I thought downtown would be historic buildings, period details, and manicured grounds. There are several antique bath houses, but many notable buildings have been destroyed by fires and floods over the years. In their place parking garages and mundane structures have been erected. The park service owns one of the old bath houses and it’s been converted into a visitor center. It’s not a national park as much as a historic monument. The surrounding hills are the national park and there’s not much to it. It is not Yosemite; That’s all I’m saying.

We did have an enjoyable time though and as we spent more time Hot Springs grew on me. We had breakfast at the Pancake Shop. They have been in business since the 1940s. We took in the view from the Mountain Tower and went to the Gangster Museum. The museum was interesting. Hot Springs was built on booze, gambling, and brothels. The local police and politicians protected the illegal activity, making it a hotspot for gangsters. Baseball teams had spring training there. Celebrities and wealthy people frequented the casinos, and they all came to “take the waters.”

The following day Steve and I went to the Quapaw Bath House and relaxed in the mineral rich spring water. It didn’t cure Steve’s arthritis, but it did soothe my muscles after a morning hike. We finished the day at Grateful Head, an open-air beer garden overlooking downtown. All in all, we had a good time.

Hot Springs could be so much more if the state poured some money into revamping downtown. Maybe build a 1930 style casino. We did see several buildings being renovated which is encouraging. If you visit Hot Springs let me know what you think. As for us, we left a day early to begin our multi-day journey across Texas down to Big Bend NP.

Thanks for joining us on our trip.

Is that the Chattanooga Choo Choo?

Is that the Chattanooga Choo Choo? Why yes, it is. We’re here in Chattanooga enjoying the sites. The trip down was pleasant. Every time we drive through Virginia, I think we should move there.

The first day driving through the Shenandoah Valley and Blue Ridge Mountains was beautiful. The eastern red buds, and forsythia were in full bloom decorating the roadside. Cruising down Rt 81 singing to the radio is a wonderful ride. Steve had the pleasure of listening to me sing for hours on end.

During the trip we started getting an alert every time I hit the brakes: “Service Advance Trac”. Huh, I wonder what that means. Steve works at Acton Ford and he’s friendly with the mechanics so he gave them a call. His friend Dave advised us that it probably is not a major issue.

The second day we drove in rain, sometimes torrential. We also got an additional alert: “Pre Collision Assist Not Working”. Luckily, I don’t plan on having a collision. Every time we hit the brakes it dings and flashes. At the very least it’s annoying. Again, no one thinks this is alarming. I guess I won’t worry about it. Thankfully, we arrive at our campground Raccoon Mountain safely. Let’s check out Chattanooga.

Steve is a car guy. The Coker Auto Museum is right up his alley. I’m not usually interested in transportation museums, but this place is amazing. Dozens of antique motorcycles are displayed 3 high along the walls. They look incredibly dangerous to ride and I’m sure they were. The car collection is diverse. Everything from an Italian luxury auto to delivery trucks to roadsters. The museum is connected to an auto restoration garage. You can see all the projects they’re working on; it’s fascinating. They also have a carpentry shop where they make wooden spoke wheels. I thoroughly enjoyed The Coker Museum.

In the afternoon we visited Montague Park sculpture field. I like sculpture parks. The size and scope of the park was enthralling. How much time, energy and money goes into creating and displaying these massive works of art? Steve is less enthused, but he goes along with me.

I planned Thursday’s itinerary, so I left Friday up to Steve and he knocked it out of the park. I have been looking forward to riding the incline railroad, but they closed it for repairs April 8^th. Can you believe it? We missed it by a couple of days. Instead, Steve planned on driving up Look Out Mountain to take in the view. We accidentally found Rock City. We had no idea what it was. It turned out to be the most incredible botanical garden I have ever seen. Steve isn’t really into gardens, but it was his turn to be pleasantly surprised. We both loved it. I’m devoting one whole page to the photos. After Rock city we stumbled upon Point Park. A national park memorializing the battle of Lookout Mountain. What a great day to wrap up our stay in Chattanooga.

Saturday we’ll hang out and get ready for departure. On to Hot Springs Arkansas. Thanks for following along…

We Did it!

Our first foray into long haul camping is a success. We’re in Bethel Pa tonight, Buchanan Va tomorrow. I don’t want to get overconfident, but travel went well today. Once we got on the road things went smoothly. The days preceding not so much. Let I me tell you about that.

A few days before departure it snowed. 3 inches of slushy snow. Fun. Wednesday, I read an article that said if your camper tires are more than 5 years old, they’re no good. It doesn’t matter how they look they need to be replaced. I checked the date on our tires, 6-7 years old. I had visions of a blowout on the highway with us careening wildly off the side of the road. As soon as Steve walked through the door, I told him “WE HAVE TO REPLACE THE TRAILER TIRES!” He was thrilled. We had talked about replacing the tires months ago and both agreed they look fine. Now I’m in full panic mode. “Call the tire place, see if they can do it right away” I screeched. Steve’s a good guy so he went to the tire shop, ordered new tires and made an appointment for Friday. When he went to the shop Friday they had neglected to order the tires. Oh well. I guess the tires are fine.

Saturday we were busily packing. When the time came to load our nifty foldable E-bikes, I couldn’t find my key. I thought I had my key, but it didn’t fit. I had a mystery key. I always put keys in a small basket on the kitchen counter. Why isn’t my bike key there and what the heck is this brand new key that doesn’t fit anything? Now I go into frustrated panic mode. I don’t know where to look because I always put keys in the same place. You know, so I won’t lose them. I call locksmiths. They can’t make a key for an e-bike. I contact the company. There’s nothing they can do. Steve figured it out. I had dropped my bike key in the box for the bike lock. I mistakenly picked up the bike lock key and put it in the basket on the counter. What made him look in the bike lock box? I don’t know, but I’m glad he did. He’s pretty smart. We finished packing in cold drizzle.

Finally, the time came to hit the road. Sunday morning, we pull out of the driveway and travel 100 yards when we realize we don’t have the road atlas. Do we need the atlas? Not really. We have an RV GPS and our phones. We like the atlas, sometimes it’s handy to look at a paper map. So, Steve pulled over and I trotted back to the house. I discovered that we had left the garage door open so it’s just as well.

When we finally made it out of town, everything went fine. Only had to turn around once. We’ll get the hang of this camping thing. Chattanooga Tn is in our near future.

Thanks for following along on our adventure.

I can’t seem to upload photos. Tech issues. Photos at a later date.

What Now??

I feel better than I have in years. Literally two and a half years of varying degrees of illness. So…What do I do now?

Missing-Brain-Jigsaw-Puzzle-Prismatic — I’m puzzled

My cancer is cured. That is what my doctor told me at my two-year visit. The FLT3 genetic mutation that I had increased my chance of relapse early on. The first hundred days after transplant were a high-risk time for me. Every day that passed decreased my risk of relapse. Today the chance that I will relapse is infinitesimal. My cancer journey is over. I will always be a transplant patient and I still have to see my doctor every six months, but leukemia is in my past.

Dr. El-Jawahri discontinued my last two prescriptions and what a relief that was/is. I have been taking an anti-viral and oral chemo daily for two years. The side effects were unpleasant. My intestines have been a jumbly, rumbly mess. I learned to be careful about what I ate. Still, some days I didn’t dare stray too far from the house. And the fatigue, a ball and chain I dragged through the day, mostly gone now. I feel better than I have in years. Literally two and a half years of varying degrees of illness. So…What do I do now?

When I was diagnosed in 2015 I was in the midst of a career change. I was one course short of getting an associate’s degree in web development. I was an A student and I had every intention of taking the final class in the next semester. In the third week of an internship, I was suddenly hospitalized and received massive amounts of chemo. For the next six months, I was incredibly ill. Guess what happened to my newfound knowledge? It evaporated. Chemo was like a blowtorch to my brain. I can’t blame it entirely on chemotherapy. Anytime you learn a new tech skill, it’s important to use it. Practice and practical application cements the information in your brain. It’s mostly the chemo though. It seems to have carved a hole in my memory.

So… what do I do. I spent time, energy and money on programming classes. Should I start over and try to relearn C++, HTML, CSS and Visual Basic? Alternatively, should I take this as a message from God? “Gayle, take a hint, a career in web development is not for you.” said the almighty one. What to do, what to do? I wake up at night with this question ringing in my ears. Let me be honest. It’s not just the career question that has me puzzled. My life changed abruptly in June 2015. Now it has happened again. Until recently, my world revolved around Leukemia, treatment and recovery. Today I am free to return to a normal life. You would think that would be easy. I’m sure I’ll figure it out although it might take some trial and error. No one can do it for me. Stay tuned in, the life after leukemia adventure continues.

image of Christ

What does that feel like?

It is odd. I owe so much to this young woman. Without a Bone Marrow Transplant, my Leukemia would have almost certainly returned. That would be curtains for me.

We left Massachusetts at 5am August 10^th to head to Wisconsin. After twelve hours of traveling west on interstate 90 we stopped for the night just short of the Indiana border. Friday morning we finished the trip, just over 1100 miles. It’s a long drive but well worth the effort. I’m going to meet my bone marrow donor. Steve and I have been anxious to meet Kelly and thank her in person. It’s not possible to express the level of gratitude we feel, but we can at least buy her dinner.

It is odd. I owe so much to this young woman. Without a Bone Marrow Transplant, my Leukemia would have almost certainly returned. That would be curtains for me. I had Acute Myeloid Leukemia with the FLT genetic mutation. That genetic mutation means that my leukemia would not stay in remission with chemo alone. My best and statistically only chance was a successful transplant. If the match had been less than one hundred percent, I would probably have had significant rejection issues. I am in contact with people on the LLS community forums whose side effects are disabling. Leg swelling, skin disorders, intestinal, lung and liver issues to name a few. For some people life after transplant is a living hell, but life nonetheless. My recovery has been nothing short of miraculous. I’m nearly two years post-transplant and my complications are minimal and manageable.

Did you notice I said “had” acute myeloid leukemia? According to the medical professionals, I have AML that is in remission. They won’t consider me healed until the fifth anniversary of my transplant. I declared myself cured the day I got the transplant. That is my attitude. Leukemia is behind me. When I reached the summit of Kilimanjaro, I asserted my recovery from treatment and transplant as complete. Again, my doctor disagrees. I still drive into MGH every other month so they can draw blood, monitor my blood cell counts, check my general health and give me injections. In September, I get the final installment of my childhood immunizations. I hope the appointments will be quarterly soon. I’m not complaining. I am the lucky recipient of a 100 percent matching, unrelated, bone marrow transplant.

Which brings me back to Kelly, my donor. We met her and various members of her family Saturday night for dinner. I wanted to hear her side of the story. She tried to make it sound like not a big deal. She was in the college library when a donor drive was going on. Being the altruistic gal that she is she went ahead and filled out the paperwork and had her cheek swabbed. The chance that she would ever be called to donate was slight. Then it happened. The registry contacted her for further testing. Lo and behold, she was a perfect match! She flew to a Detroit hospital and spent a few hours in the operating room. The doctor pushed a coring/extraction tool into her pelvis and drew out marrow many times. She spent a night in Detroit and flew back to Wisconsin. She had swelling across her lower back for over a week. It sounds uncomfortable and inconvenient. I thought her marrow would be drawn at a local hospital. I didn’t realize she would need to travel. It would have been far easier to say no. Thank God, she said yes. No matter where life takes her she will always have the certain knowledge that she saved a life. What does that feel like?

Oh, by the way Kelly and her family are delightful people. They invited Steve and me over for a cook out Sunday, which happened to be my birthday. We chatted and laughed. They surprised me with homemade birthday cake and sang happy birthday. It was a perfect endnote until I meet my lifesaver again.

Kelly, Steve and I — We met my donor Kelly

Celebrity?

Sometimes I wonder if I share too much. Is it necessary for me to reveal my most private issues like social anxiety?

I wrote this months ago and I didn’t post it to the blog. Why? Sometimes I wonder if I share too much. Is it necessary for me to reveal my most private issues like social anxiety? Well, after some thought I have decided yes it is necessary. This blog is about self-discovery and pushing myself to be a more self-aware person so here goes.

Recently the local TV station, WMCT-TV, interviewed me. I had done a couple of newspaper interviews about climbing Kilimanjaro, but this was the first TV spot. Of course, climbing Mt Kilimanjaro is not remarkable on its own; many people climb Kili every year. The fact that I did it eighteen months after a Bone Marrow Transplant makes it noteworthy. Also raising money for the Leukemia and Lymphoma Society gives the story another wrinkle. I was surprisingly relaxed about appearing on camera. It is easier to talk to a camera than a flesh and blood human being. No stress about remembering a name or saying the wrong thing. I have social anxiety, which most people would find hard to believe. I hide it well I think. On the surface, I try to smile and concentrate on what people are saying. On the inside, I have nagging fears. I am sure I will call someone by the wrong name or misspeak and offend them. It is a constant drumbeat of doubt and it can be exhausting. It would be easier to stay home, but I do not want to be a hermit.

I enjoy forming meaningful relationships with people. It’s the struggle of small talk that bedevils me. I want to know what you love to do; what brings you joy? What do you fear? What makes you laugh? Tell me about your life experience. We are all products of our upbringing and events. What makes you, you? Of course, you can’t delve into the inner workings of someone’s mind until you know them a bit. Some people I would rather not get to know better (being honest). Hence the need for small talk. You have to dip your toe in the water before you decide to dive in. Therefore, I push myself to meet new people and socialize. I know I sometimes come across as standoffish (is that a word?) or conceited. That is not the case. I feel insecure approaching strangers.

Recently, my stepson Chris got married to his sweetheart Bri. I have met Chris and Bri’s friends several times at various parties. Even though I know their friends, I’m extremely hesitant to call them by name. The entire reception I don’t think I addressed a single person by name. The drumbeat of doubt continually pounds away. You’ll say the wrong name or something inappropriate, you’re going to offend someone says the negative ninny in my mind. I smile, socialize and pray I don’t have to introduce anyone. I told my husband years ago “Don’t wait for me to introduce you, just stick your hand out and say hi I’m Steve. If you wait for me to make the introductions, you’ll be waiting a long time.” It can be awkward at times, but I can’t seem to get over it.

Back to my rising star of celebrity. I have been asked to speak at the Rotary Club about my experience battling leukemia and climbing Kilimanjaro. A second ago, I said I have social anxiety so you might think public speaking would be an issue right? I know people that have heart palpitations when they think about public speaking. It doesn’t bother me; in fact I enjoy it. I have an interesting story to tell and I want to raise awareness of blood cancers. When you’re in front of people there is no personal interaction. You are talking at them, not with them. No small talk, no names to remember. I’m looking forward to it.

All told, I have done two newspaper pieces, one TV interview and now an upcoming speaking engagement. Oh yes this cancer gig is working out for me. I’m a celebrity in my own mind. Can fame and fortune be far behind?

Below are links to my press:

Wmct-TV interview

https://www.youtube.com/watch?v=iAxGy6Vq57E

Metrowest News

http://www.metrowestdailynews.com/news/20170130/hudson-cancer-survivor-to-climb-mt-kilimanjaro

http://www.metrowestdailynews.com/news/20170405/hudson-cancer-survivor-scales-mt-kilimanjaro

The Whiny Cranky Phase

Apparently, I have entered the whiny cranky phase of my cancer journey. Lately I have been feeling down because of the aftermath of treatment. I had a bone density test last week and the results are Osteopenia. I’m not yet 55 and I already have degeneration of my bones. Chemotherapy and Prednisone, which I was on for an extended amount of time, are the culprits.

My feet have been bothering me since I returned from Kilimanjaro and my knees have been killing me for 2 or 3 weeks. All of this makes me feel old and vulnerable. Should I buy my walker now or wait until I fracture my hip? Come to think of it, I have a walker in the closet. It’s good to be prepared. When I first got out of the hospital, I was so happy to be alive nothing else mattered. Well the bloom is off the rose. Now I’m coping with the repercussions of treatment. In addition to having Osteopenia, I am at an increased risk for both breast and skin cancer. Great, something to look forward to.

While wallowing in self-pity I went on the LLS web site. I participate in several online groups so I was looking for someone to commiserate with. Instead, I found a woman with the exact same leukemia as me. Her name is Miranda. She was diagnosed in January with Acute Myeloid Leukemia with the FLT3 genetic mutation. The FLT3 mutation increases the chance of relapse exponentially. She was looking for someone who could relate to her situation. Miranda has relapsed and the hospital will readmit her Monday. She will undergo grueling 7&3 induction chemo (intravenous chemo 24/7 with additional chemo the first 3 days) again. Hopefully, this will put her cancer into remission. The doctors are searching for a bone marrow donor, which is her best chance of survival.

Her post brought me to tears. Steve was surprised to find me in the kitchen staring at my phone and weeping. Suddenly everything came flooding back. You have AML with FLT3. That statement changed my life forever. When the doctors explained what it meant I was scared out of my mind. Instantly I am reminded how well things have gone for me.

After that devastating diagnosis, everything went my way. First, I had the good fortune to live near Mass. General, a world-class medical institution. Induction chemo successfully subdued my cancer into remission the first time. If the cancer doesn’t go into remission they up the chemo dosage and repeat the treatment which would be horrible. Miraculously I had an unrelated 100% matching bone marrow donor. That saved my life. Without a donor, my chance of relapse was extremely high. I have had few complications from the transplant. Only minor issues that are manageable. I consider myself exceedingly lucky. In fact, I am the luckiest person I know.

Who am I to argue?

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A couple of weeks after I returned from Kilimanjaro I received two unexpected yet welcome pieces of mail. First, a note of encouragement from a retired oncology nurse. This woman doesn’t know me. I assume she read my story in the local paper. She congratulated me on my recovery and urged me to keep it up. I’m touched that she would think about me in the midst of her busy life. She has confirmed what I already knew; nurses are extraordinary people. Oncology nurses in particular have a special calling. They work incredibly hard caring for critically ill people. Some patients, like me, can be a pain in the butt. I think I’m funny, but I’m not sure the nurses always agreed.

She also sent me a graphic that said, “Life isn’t about waiting for the storm to pass. It’s about learning to dance in the rain.” Yup I agree with that. There is no sense waiting around for things to happen. You can enrich the life you’re living today. No matter what the circumstance you can get out of bed in the morning with goals for the day. When I finally came home from the hospital, my goal was to walk ten steps further than I did the day before. My first day I walked from the car to the kitchen, and then I needed a rest. It was about 10 steps so I figured the next day I would double the distance! Kilimanjaro was not on my radar screen I promise you that.

Did I have a great positive attitude every day? No. Somedays I cried, whined, and felt sorry for myself. That usually passed quickly since nobody wants to listen to me whine, especially me. Many days I was extremely frustrated with my progress. That feeling persists today. I still have issues with fatigue and memory. I can’t remember if I used to have a good memory, but I think I did. Ugh, I’m getting tired thinking about it. I question if I will ever completely recover. All I can do is try my best. The only thing I control is my attitude.

Back to my unexpected correspondence. I also received a letter from The Leukemia and Lymphoma Society. They want to give me an award!? LLS funded the research that saved my life. I feel like I should give them an award. Honestly, it baffles me. I’ve done a couple of fundraisers for LLS. That’s it. What I have done for LLS pales in comparison to what they have done for me. In addition to life saving research, they provide online discussion boards, which have been extremely helpful to me. They offer more patient services than I can list here. In the future, I would like to motivate others to fund raise, but to date I’ve done little. Well I intend to accept my award graciously however undeserved it seems to me. Who am I to argue?

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